When Cayla first got diagnosed, I felt like Atlas trying to hold the world up and together. We didn’t know any children with leukemia. The only exposure to childhood cancer we had was a little girl named Kaylee from our hometown. Kaylee, just like Wes, had neuroblastoma. Leukemia and neuroblastoma are not the same. When […]
Children’s Hospital of the Kings’ Daughters
Guilt. It’s one of the most conflicting emotions you’ll ever feel as the parent of a child with cancer. When you first hear the words “your child has cancer,” you’ll feel guilty. You’ll think, somehow, you must have caused this. That it’s some sort of punishment for your mistakes. You’ll think it’s all your fault. But it’s […]
Good morning family and friends from Hotel KD room 809. Today’s focus is pain management. Cayla’s mouth sores continue to be pretty intense. Her pain level this morning rated an 8. She is now on a morphine pump to manage her pain level. She is also gagging on her own blood and mucus, as the […]
She looks so small, so fragile. And it hurts because I can’t take her pain away. She hasn’t eaten more than a couples bites in days. Her lips are cracked and bleeding, as are the sores that fill her mouth and talking makes them bleed more. Her breath smells like rotting meat. Her body aches. […]
Cayla didn’t make numbers to move into the next phase of chemo. However, she’s quite happy to be at “Texas” aka Plaza Azteca.
Meet Cayla Rose. She’s a vivacious five year old, who loves to dance and watch Disney Princess movies, especially those featuring Rapunzel, Ariel, Elsa and Anna. She has a soft spot for all animals, enjoys coloring, and likes to make others laugh with her goofy expressions and genuine silliness. She has a gift of bringing joy to […]